Remember Me

Four years. Four years ago today, I walked into my daughter's room and knew she was gone. Her little soul had left us before we even knew. Will I wake up every year on May 21 and be taken back to that day in 2009? I'm able now, after all this time, to stop myself from being dragged to a time and place where I don't need to be. I spent so much time and energy in the year or two after her death remembering every moment over and over again, my head and heart trying to make sense of it all. I finally got to a place where I realized I need to live, not experience her death over and over. I can usually stop myself from going back, from seeing the events of that day and the weeks that followed.

And yes, I do feel the guilt. I remind myself she wouldn't want me to be there. She would probably want me to remember her playing with her best friend, when they were babies and when they were older. She'd want me to remember the trips to the park, to the children's museum, or to restaurants (she loved to eat). She'd want me to be here, be present with her younger brother and sister. And I am. I'm here for them, I'm here for me. For this life, given to me, which I have to make the most of because now I feel I'm making up for the one she lost.

And what do I want? At her memorial, I spoke, amazingly enough. I can't believe now that I was able to get up and speak. Speaking up for myself is something I've always been able to do, at least, after a certain point in my life. Before that, it was about the last thing I was able to do. I spoke up for her at the service, and I asked everyone to remember her. I asked that they let me talk about her in the years to come, and that they tell me their memories, that they remember or think about her.

It surprises me who has done that. A friend told me that I would be surprised; that those I would expect to be there wouldn't, and others would come forward. And they did, and they have.

On this day, remembering my girl, I will try to keep those good memories of her in my mind, above the memories of the day I lost her. I welcome messages from those who remember her, or at least are thinking of her and those who miss her.

Remember me, remember my girl.

Happy 6th Birthday

I am EXHAUSTED. Today is turning out to be harder than I thought it would. I've had a headache the past two days, thought it was because I went for a longer-than-usual run that wore me out. Last night, I couldn't fall asleep and eventually found myself crying, missing my girl and being sad that she wasn't here for her birthday. When I stopped, I realized my headache had gone away and a weight had lifted. I didn't sleep well, woke up several times and kept having trouble going back to sleep.

Today is dragging by. I didn't want to get out of bed, didn't want to face this day, this day of her without her. For the first time, I posted a message to her on my Facebook page. I've avoided it because I know some of my "friends" aren't aware of what happened and I didn't want to answer questions. This year, I figured either they could ask or they probably wouldn't and I could use the support. But every time another message is posted, it makes me sad again. Sad that all these people are wishing happy birthday to my "angel" or "in heaven" as in, she will never be any older.

Last night I was thinking I planned two parties for her. One was at the house, and was supposed to be outdoors. It rained that day and we ended up mostly inside and trapped on the patio. The other was at one of those bounce house places. She was only two and it was expensive but she absolutely loved it.

I told my daughter last night that her sister's birthday is today and asked if we should get balloons and cupcakes. She seemed excited. Then today my husband told me that she was awake when he got home around midnight from work. She asked him about the birthday, told him she misses her sister (not entirely true because she never really knew her) and eventually went back to sleep. She hasn't said anything yet today. Honestly, I'm dreading having to talk about it.

The plan for tonight is to have dinner with our former nanny and her husband, have some cupcakes, and send my girl some balloons. And now I'm dreading even that. Why celebrate someone who isn't here? I keep telling myself a birthday is for celebrating that she came into my life. Today it's so hard to separate that from her having left it.

The past 3 years, we celebrated with friends whose daughter was my daughter's best friend. They moved away 6 months ago, so that's not an option. Another friend who was so supportive lost her own son a year ago and obviously isn't around in the same way. I miss both of them.

I can't figure out why this year is hard, but as another angel's mommy said, some years are just harder and there isn't necessary any reason why. Tomorrow is a full day, I have to go out of town for work, then am leaving the children with a new sitter so I can do a mom's night in at another mom's house. Right now even all of that seems too much. I didn't think I'd come to this again, when just getting up and starting the day would be hard. I keep telling myself that tomorrow will be better even though I really don't know. This weekend was planned as a regular series of days but it turns out it might not be.

In past years, I wrote something about my daughter to remember her and want to do the same. I have no idea if these are repeats, so forgive me if they are. I have only 2.5 years (little less) worth of memories so I'm bound to run out eventually.

When my daughter was a baby, my husband would dance while carrying her to the bathroom and sing "We're going to the spa, we're going to the spa." Neither her brother nor sister got the same dance or song. We had a landscape crew that would come mow the lawn and trim all the bushes. My husband would tell her "the guys" were coming, so she always called them "the guys." It sounded so funny coming from a 2 year old. While she loved animals, she was mean to plants and would roam around our big backyard ripping flowers off various plants. She did the same at other people's houses. She had balloon radar, and once on a trip to visit my family, she spotted (or sensed) a giant red balloon from at least a mile away while heading to a shopping center.

Happy Birthday to my big girl. If you were here, I would give you the 6 red balloons your daddy bought, sing to you, and have the best party ever.

Birthday Countdown Again

Tomorrow my daughter would have been 6 years old. It was an age I was really looking forward to. The end of the preschooler years and the start of being a big girl. This year is different, this year I have her younger sister not only aware but also asking questions. I told her that her sister's birthday is this week and asked if she'd like to get cupcakes and balloons. She was very excited about that, and asked if she'd get to see her sister. When I told her no, she asked if we could at least call her. And again, I said no, that there aren't phones where her sister is.

Our former nanny said maybe we should just use the actual word "dead" with her. My husband didn't like that. Apparently the nanny told her that her sister is with God and Jesus, because a couple of months after they started daycare, my daughter blurted that out. Not being Christian, this wasn't exactly what I would have told her. So I'm slowly introducing my own thoughts. Telling her that her sister died honestly doesn't seem to me like it would help, because she has no understanding of that word, she doesn't know anyone who was here and now isn't. So ugh, I don't know what to tell her, but fortunately the questions usually trickle out.

Tomorrow will be a whole other challenge. I want to celebrate my daughter, and share that with my other children. But I don't want to confuse her sister, or be sad. I promised my daughter I'd never mourn the day she came into my life, only that she left it. It's impossible to look at pictures of her, videos, think about her birthday and not want to burst into tears. I don't even have a specific thought anymore when I see those things, don't necessarily remember the events when the pictures were taken. I am simply overcome with sadness. And maybe because I don't cry often, when I do now, it feels like an enormous weight.

So tomorrow. Tomorrow I will go buy cupcakes and balloons to share with my children and friends. Tomorrow I will remember the day my girl came into this world and made me a mommy. Tomorrow I will eat a cupcake and send her balloons and miss her. Tomorrow I will celebrate her birthday.

At Arms' Length

In the days and weeks after my daughter died, I took care of her baby sister in a fog. I was breastfeeding, and my baby girl refused to take bottles, so all throughout each day, someone would bring her to me so I could nurse her. Then that person or someone else would take her back. Oddly, at first I didn't want her near me. I felt somehow like I'd done something to cause my daughter's death and didn't want to put her sister in danger. I know now every parent feels that way no matter how her child dies. Still, I just couldn't wake myself up enough to take care of someone else at first. I remember even telling a friend one day that I was fine with her watching the baby because she couldn't f__ up any worse than I had. She seemed horrified and told me I hadn't done anything.

There eventually came a point where I wanted my daughter with me. And she was, constantly. She was such an easy baby--slept well, nursed like a champ, was content and liked being around all kinds of people--that we took her everywhere. I came to realize that I didn't want her away from me. I heard about a mother who lost her son the same way I lost my daughter, but she wasn't there when the accident happened. She was on vacation with her husband and her son was staying with grandparents. I often think about that mother, how it must have been to arrive afterward, knowing you were already too late. The truth is, I felt the same way even though I went through various motions (calling 911, CPR, etc.) of trying to help.

So for years, I've kept my daughter at arm's length. Literally. I wanted to be able to snatch her out of harm's way if I should need to. And if I wasn't, I wanted my husband to, but never told him about at arm's length. So I'd just yell at him if he let her go past that boundary.

My son was born 5 weeks early and spent 10 days in the neonatal intensive care. I immediately had to let go, with no choice or say in the matter. In a way, it was freeing to have the decision made for me. Once he came home, he was in our room for the first couple of months, just like our girls were. His older sister was still in the crib and I wasn't ready for her to be out of it yet. But eventually I was very ready, and they both made the transition relatively easily. And still I worried about her. I've never worried about him the same way. I keep thinking that because he wasn't there, because he was born after the darkness surrounded us, I don't need to worry. I had such a sense of dread from the moment my first daughter was born, I was always afraid for her. And because her sister was there when she died, I worried about her too.

A few weeks ago, both my children went to daycare for the first time. It was really hard--I've never really had someone else take care of them, other than the nanny and occasionally a close friend. But I was good. As a former preschool teacher myself, I know a hovering parent makes things worse for the child. So I dropped them off, and called to check in the first week. They've done pretty well.

But I'll admit it, I still think about what might happen. If something should happen to them, I won't be there, won't get any chance to try to help, to save them. And worse yet, no chance to say goodbye. By the time I saw my daughter that morning, she wasn't speaking, wasn't breathing, and I don't know if she even knew I was there. I am grateful that I did see her, because I wouldn't have believed it was all real if I hadn't (I assume).

Letting go, no longer at arm's length.

Moving On, Moving Forward, Moving Away

Soon, too soon, after my daughter passed away, some (completely insensitive) people used the phrase "move on." As in, one day you'll be able to move on. It immediately made me upset and angry, though at the time I couldn't say why. It didn't take long to figure out that I didn't want to move on. Moving on is what you do after you leave a bad job or horrible boyfriend. You want to be able to say to your friends, "Yes, I've moved on." This means that horrible thing isn't bothering you anymore, doesn't take up space in your head or play a part in your life. Obviously not what I wanted.

So for the past few years, I've talked about moving forward. That is what I felt I had to do. To me, this had a feel of gathering up all the bits and pieces I could salvage from the wreckage of my daughter's accident and death (including my husband and baby girl) and continuing to walk in whatever direction I could. This to me felt like moving away from the accident and horrible feelings associated with it in an attempt to create a new reality for my baby. I didn't want her to be trapped in the tragedy, nor did I ever want to forget my firstborn.

Several months ago, the day came when my daughter had been gone longer than she was on this earth. Then I started thinking of myself as moving away from her life. Hate this one. But it IS what's happening. She was with me for such a short time, it's bittersweet to think that her younger sister is now older than she will ever be. And she has a younger brother she never got to meet in this world and in this life.

The one thing all this movement has made me realize is something I've always known--life goes on, without or without you, and it's up to you to decide whether to get up and go or sit where you are and watch it go by. Sitting is something I couldn't do to my second daughter, and definitely not to my young son.

I do still picture myself with my children under each arm, somehow dragging my husband along with all of our possessions, including those of my older daughter, walking uphill slowly but surely. A close friend of mine who lost her husband very suddenly when my firstborn was just 3 months old often said to me she kept putting one foot in front of the other. That's what I believe I have to do. I never know where I'm going and don't always move in a straight line. And I have on occasion been picked up by a tornado and dumped somewhere, I can't always tell where. But I pick everything up again, and keep moving.

Exhausting, I know, but isn't that what life is all about? It's tiring, messy, funny, noisy, happy, and, if you're lucky, full. All you can do is keep moving.

New normal?

My fingernails are long again. This is truly amazing--I bit them from childhood (as far back as I can remember) until I was 23. I stopped when I was training to be a teacher and a woman in my class told me her daughters were picking up the habit from her. After my daughter died, I started biting them again. As much as I wanted to, I couldn't stop. It's really the only bad habit I have--I've never smoked, drank excessively, overeaten, etc. I managed to start exercising again, cook, sleep well, and so on, but I just couldn't stop biting my nails. Most of the time I wasn't even aware I was doing it. I tend to bite them when I watch TV, or drive, and my mind is preoccupied.

Suddenly the other day I noticed my nails are long again. I mean REALLY long, as in, I'm having trouble typing.

I also noticed it's May 18, three days after my birthday and 3 days before the 3rd anniversary of my daughter's death.

How can both be true? How is it that I'm not dreading it this year? I've been busy with a new baby. And May is now the month between my daughter and son's birthdays, not just the month I lost my eldest. I do find myself thinking about her more often than I have the past few months but there isn't the despair I felt the past two years. I honestly can't explain it. I feel like I should feel horrible, almost feel guilty that I don't.

I do believe that we are meant to survive, to be able to live. I remember the pastor who performed my daughter's service saying that the memorial was for the living, for us to remember her and give us hope in the face of something so bad it was almost impossible to imagine life after it. All I can think is that this is the point where I've again started living, not just surviving. The first two years, there are so many things I barely remember. I know I nursed my daughter after her sister was gone, and I remember my tears falling on her. But it doesn't feel like months and months of nursing (she never would take a bottle), it seems like one day I was nursing her and the next she was maybe 18 months old. There's a huge gap in my life where I was trying every day to just get up and get going. I don't think I do that now.

And ugh, again, it's both a good thing and a bad thing. Three years, really? It only took 3 years to feel better after her death? But did I want to have flashbacks and break down crying longer than that? Oh, I'm not saying that never happens, only that I can at least say it doesn't happen often or regularly. At first it happened every day, then maybe every other day. That's not the case anymore. And as someone told me I would, I do feel as though it means I'm forgetting her. But I'm not, I'm actually forgetting her death and trying to remember her life. Honestly, even that's tough. I'd like to tell other parents you'll never forget every moment of your child's life, but humans just aren't capable of that type of memory. I do remember her, what she looked like, phrases she spoke, the sound of her laugh. But remembering her is more like watching a movie. And I'm so relieved to say that even memories of the day she died are more movie-like now than real life.

When I started to feel bad for not wanting to remember her death, I think of something else another bereaved parent told me. What would she want? Would she want me to remember her the way she was that day? Probably not. Would she want me to cry every day, while taking care of her brother and sister? Probably not. I'm trying to live my life the way she would want. And I guess maybe she wouldn't want me to bite my nails.

The Power of AND

Someone once pointed out to me (not too long ago) that using the word "but" in a sentence generally negates all the words that came before it. I like you, BUT. Thanks for helping me, BUT. I'm happy to be here, BUT. I try my best not to use that word, BUT it's a habit. I don't think most people realize that it really does undo the good things you say sometimes.

My daughter turned 3 this week. She's reached a whole new level that her sister never did or will. Her little brother is 10 months old, and they are each other's biggest fans. I so wish I could have seen my girls together. I wish my second could have had a big sister, she really seems to want one. And I wish my oldest and youngest had met.

I love the children that are here with me, AND I miss my girl who isn't. I'm excited to watch my children grow, AND I wish their sister could be here too. I'm looking forward to my children's future, AND grieving for the future I'll never get with their sister.

In talking to my friend who lost her son, I sometimes feel as though being relentlessly cheerful got me through that first year, maybe two, after my daughter died. That's not true. I am not cheerful. If anything, I'm quiet, somewhat reserved, I rarely shout in excitement, if I were to win a million dollars, I'd probably say, Great! and move on to whatever it was I was planning to do next.

So when my daughter died, I didn't think "I have to stay happy to get through this." I did know it would just take time. At first, I thought it would be like a cut-eventually it closes up and you're left with a scar. It's actually more like getting your arm cut off. The area does heal, in a way, but you will always be missing something. You adapt, learn to work around it, and try to move on.

That's the power of AND. It's both this and that, good and bad, sad and happy. By "it" I suppose I mean life. I realized this sometime last year, when one of the friends who came to my house immediately after my daughter left mentioned that her best friend's birthday is on my daughter's death anniversary. One doesn't make the other better or worse, and they are forced to coexist side-by-side forever.

It's only recently that I remembered that thinking of these as AND rather than BUT would change the way I thought of them. I'm not cheerful, but I would like to think I'm strong, stronger than I ever imagined I could be. AND gives me strength, while BUT weakens me.

These days, I'm feeling very strong. I don't burst into tears every day, week, or month. I don't have flashbacks too often. I can honestly say that I enjoy the parts of life I should, at least most of the time. There is always that thought "she should be here." I want to try to use AND to keep me moving forward, and not let BUT drag me back into sadness and despair.